IETF is a non-profit organization with a dedicated full-time team and a global network of hundreds of volunteers and advocates committed to advancing research, raising awareness, and providing support for essential tremor. It offers free educational resources and materials to inform healthcare providers, patients, and their families about the latest advancements and treatment options and supports researchers by providing funding to advance the understanding of essential tremor, develop improved treatments, and work toward a cure.
IETF’s mission - is to provide hope to the Essential Tremor (ET) community worldwide through awareness, education, support and research. It is located in Kansas, USA.
IETF and VILIM ball has partnered to educate the IETF community about the latest and most advanced tremor management device - the VILIM ball.
IETF and VILIM ball cooperation
On the IETF website you can find a lot of useful information about the VILIM ball, a medical device for reducing hand tremor. Check the Assistive devices section to find out more.
Podcast between the IETF and VILIM ball creator
Hear the podcast with VILIM ball creator Mantas Venslauskas, the CEO of the Vilimed company. He talks about how VILIM ball works, how it was tested and warns against less expensive imitations. Tune in to the full conversation with Patrick McCartney, Executive Director of IETF, below: https://www.youtube.com/watch?v=qHvx9KuV2lw
Several times a quarter, the IETF publishes a magazine called Tremor Talk. Tremor Talk features inspiring personal stories of resilience, innovation, and adaptation, offering valuable coping strategies for those affected by essential tremor. Readers will find relatable and uplifting experiences, along with articles covering the latest advancements in ET research, insights from industry professionals, and other relevant topics of interest. Here is a link to June, 2024 Tremor Talk magazine, where you will find an article about a breakthrough device for hand tremor reduction - VILIM ball.
The IETF has created some virtual education events on various topics around essential tremor, although essential tremor is the neurological disorder that affects the largest number of people in the world, yet not everyone is familiar with the condition. In order to spread Essential tremor awareness around the world, our company VILIMED is a corporate partner of the IETF and helps to make educational events and podcasts possible. You can find all the topics here.
Contact info:
Contact for inquiries: info@essentialtremor.org
Website: https://essentialtremor.org/
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